Okay another very bad nights sleep with pain being the main culprit keeping me awake
Trying new meds is a bit like “De ja vu” I’m only on a low dose but only getting a slight benefit pain management which is good, but on the other hand the side effects I’m getting are not good. This has been the same pattern for each pain meds I have been tried on for the last 8 years.
- The widespread itching has gotten worse.
- Feeling a little high most of the time.
- Concentration is still bad.
- Forgetfulness is still bad.
- Oh yeah forgetfulness is still bad.
- Short term memory is rubbish.
- What was I doing?
- Where am I?
- What day is it?
- Why am I here?
- What time is it? I don’t know how many times a day I ask these 5 questions but I can tell it’s a lot.
- Neck and lower back pain are still bad.
- Pain when breathing is still the same.
- Still getting the occasional hand tremors.
- Balance is still poor as is co-ordination.
- Still dropping and braking things.
- Still tripping and falling quite a bit.
- Have having absences since I started the new meds.
- Spacial awareness not good.
- A major improvement on Saturday West Ham won 4-3.
- Brighton won today after playing for about 3 hrs at Millwall, so the boss will be happy.
- Haven’t broken any crockery for 2-3 days that’s a bonus.
- Happy St Patrick’s day.
- Enjoying sitting in my shed tonight writing my blog looking at my favourite pictures hanging on the walls
- Last but not least my memory is still crap.
Tomorrow I’m going to work on my memory album and also write down of all the countries, cities and American states where I have either worked or visited.
One last thing I would like to recommend a book that I read recently. It’s called “Why are you pretending to be normal” by Dr Phil Friend OBE and David Rees. It about how disabled people see their own disabilities and how able-bodied people see our disabilties. It asks a really interesting question about near the end of the book. “Are you disabled by other people’s perceptions of you or by your own perception of you?”
Thanks for taking the time to read my ramblings and remember be kind to yourself and to others.