Ok, so day six of taking my new medication.
- The burning and freezing sensations to my hands and feet have stopped.
- Still getting headaches but not as severe or long now.
- Absences have almost disappeared.
- Widespread itching is getting less each day.
- Improvement to chest pain, as only hurts now when doing activities.
- Drowsiness is getting less
- Still fatigued.
- No change to pain in legs, feet and toes, knees and ankles, thighs and calves.
- No change to pain in hands, wrists and fingers.
- No change to lower neck pain and lower back pain.
- Memory and concentration still poor.
- Mobility still a problem with coordination, trips, falls and legs giving way.
- Grip stillpoor and painful, so still breaking things
So some improvement is a positive sign, each small step is a victory.
I will be starting the second part of my new treatment on April 16th which will be a high dose infusion of an anaesthetic called Lignocaine, which will hopefully reset the amount of pain caused by my nervous system could return to zero or be a lot lower. So this could be just one dose and it works in which case job done, or it could be temporary and I would either repeat the treatment once a year or once every 3 months whichever works best. or it could be that the treatment just doesn’t work.
But before this happens I will be having my yearly head/neck/spine MRI to check if there are any more spinal chord liaisons and to also check the compression fracture and bone thinning caused by the Osteoperosisis so fingers crossed there will be no change.
So on the whole I’m feeling pretty positive about things, I know I am a long way off being able to start working again. Though maybe I will be able to getting out of the house and do some of the things I enjoy doing like people watching whilst out having a coffee or doing some photography, maybe I will even get the chance to go and watch the Hammers play at home sometime as it has been far too long since I saw them play live.
Finally I made a start on updating my memory book which I am finding really enjoyable. I have also been doing some thinking (which some would say is dagerous) and have made the decision that I will not carry on using a mobility car when it comes up for renewal in November as it’s highly unlikely I will be driving for quite a while.
Thank you for reading or following my blog but even if nobody is out there reading it that’s ok because it is helping me make sense of what I am going through, it is also helping me to stay strong, off to listen to Fleetwood Mac “Rumours album”