Things are changing
Ok, so the side effects from the new meds seem to have gone and my sleep pattern is almost back to normal. One thing that’s changed though is I’m no longer getting the burning and freezing sensations that I got in my hands and feet. So I’ll take that a positive step. Next step is next month when I go to hospital for my first Lignocaine infusion which may or may not help with the pain side of things.
I work for the NHS and the department I work for is called the Expert Patients Programme (EPP), though I am currently on long-term sick leave.
If you want to follow us on twitter @sct_epp
If you want to follow us on Facebook http://www.facebook.com/sctepp
Our web address is below, if you are interested in what we do.
https://www.sussexcommunity.nhs.uk/services/servicedetails.htm?directoryID=16306
Anyway on our Twitter feed today they shared a poem. Now I’m not really one for poetry, but this one really struck a chord with me, I could really relate to the words and it got me thinking about what I do and how I act.
So I thought I would share the poem with you, it’s called.
Behind The Mask
© Melisa Bernards
Hiding the hurt, hiding the pain.
Hiding the tears that fall like rain.
Saying I’m fine when I’m anything but.
This ache in my soul rips at my gut.
My skin is on fire; I’m burning within.
The world must stay out; I’ve built up a wall.
My fragile lie will collapse should it ever fall.
Lonliness consumes me; it eats away the years.
Until my life is swallowed by unending fears.
Waiting for someone to see I wear a mask.
And care enough to remove it; is that too much to ask?
Take care of yourselves
Gary x
