My last post was back in November, too long but a lot has been going on, firstly my health nosedived over a short period of time, So here is a little timeline of how things have gone since I had to stop working in June 2018:-
June 2018 GP also referred me to an Osteopath to help sort out my Osteoperosis medication which was causing problems this was one of the issues that had forced me to stop work.
July 2018 Contacted local mental health services to try and get some help on dealing with all that is going on with me was told it would probably September 2018 before a place was available. Unfortunately I am still on the waiting list, I’m not sure what they can do to help me any more, or even when they will be able to.So as a result I have lost a lot of faith in them and it has added slightly to my anxieties.
August 2018 Saw my neurologist in London who upped my meds and referred me to their Pain Management centre at Charring Cross Hospital which I attended yesterday 13th March 2019. I will come on to how that went in a bit.
September 2018 went to my appointment with the osteopath a very nice and helpful Doctor who listened to me and was very straight with me in her answers and decided to replace the weekly pills I was taking with a yearly infusion which I had my first session at East Surrey Hospital Cancer Suite. I can’t praise the staff on how welcoming and compassionate they were towards me they we even managed to have a laugh. They made it a very enjoyable experience.
October 2018 I contacted the local mental heath services again but was told there was still no therapists available in my area and that they would contact me when a therapist became available.
November 2018 the symptoms of my long term conditions jumped again usually my symptoms just gradually got worse over time with occasional significant jump. it was also the last time I was able to go for a coffee and meeting with my manger or work colleagues at a really nice local cafe. Each month I would really look forward to the coffee mornings as they were pretty much the only social engagementI had and that I really enjoyed, All of my other trips out revolved around the Doctors Surgery, The local Pharmacy or a visit to one of the many Hospitals I attend.
December 2018 things started and it seemed my symptoms were settling down again, so I was invited to attend a team meeting at my place of work, it was a fantastic morning at with the amazing people that I am privileged to call my workmates and really started looking forward to the upcoming Christmas dinner which is always an amazing get together with colleagues and volunteers.
But it wasn’t meant to Be as my health had another setback with the pain I get in my lower spine and the base of my neck significantly and this has pretty much left me unable to drive any distance or use public transport because it causes the pain becomes almost unbearable. I have also been referred for physio so I am now on two waiting list, which of course links into the title of my blogsite.
Then during Christmas I had to go to hospital to have extensive blood tests prior to my upcoming osteoporosis treatment.
At last an end to the a year that has not been one of the finest I’ve experienced or as the Queen would put it ” My Annus Horibilus”
January 2019 new year new hope. Got off to a good start my Osteoporosis treatment went really well. Then out of the blue a phone call from the local health service, instead I came down with a bump they offered me a place in a location I was unable to get to. They knew this would be the case, but felt they had to offer it to me. The call ended with being told that I was now near the top of the list bu still waiting.
Had a couple of good days after that with home visits from the boss and a colleague, who brought me coffee, news on what was happening as regards to my continued absence from work, we had a laugh, they always lift my spirits, my dog Dora loves them and they always get a parting present BY BEING covered in her fur.
Another plus came along at the end of the month and that was a chair I bought.
It reclines, it raises me to a standing position, it has heating and also has 3 massage settings but alas no cup holder and the best bit was the wife spotted it was 50% off the price. Bonus.
February 2019 Barely ventured outside the house as the pain and fatigue levels are getting worse, falls have increased in frequency Because I experience a loss of motor function in my legs, no warning I just go down.
My short term memory has turned to mush as well as powers of concentration. On a more positive Dora the dog and myself had another couple of coffee visits from my wonderful colleagues, though I think secretly it’s the dog there coming to visit.
March 2019 Has arrived and there are still some problems but there are some really good positives as well the love and support that I get from my wife every day which reminds me how strong we are together and that I would not be able to cope on my own without her. Second are the truly amazing people I work with, again I don’t think I could cope without them too and there is my dog who always makes me smile.
So yesterday 13th I had an appointment at the pain management centre in Charring cross Hospital and my wife was unable to take me and this is why I said that I would not to be able to cope without the constant support I get from the people I work with as my wonderful boss insisted that she would take me in her car, it was a long day but the appointment went really well I am now trying a new medicine from the opioid group called Tapentadol and will start trying a Lignicane( an Anastetic) infusion which hopefully will get the nerve pain under control and if it works it is a treatment I will be able to have done regularly.
It’s been a bit of a roller coaster ride, hopefully things will start to smooth out a bit, the people that matter the most to me are keeping me positive and sane, sort of.
So again thank you to my wife “I love you” and to my colleagues and friends you have my gratitude and I love you all too. K, N & S.
Be Kind to yourselves x
P.S. Boss thank you for getting me home safely, but true to form I had a bit of a moment in the Kitchen last night whilst making coffee and I think I brokena toe when I was attacked by the washing machine 🙂