Music Vs Pain

Over the last 3 years, listening to music has become one of the main tools I use to help with my pain, I can use it to help me relax,  or to carry out certain tasks by distracting me from the pain, tasks such as driving short distances, reading, writing or tending my Chilli plants.

I have built up a wide and varied selection of styles and band’s that I like to listen too, so selecting the correct band/music is very important, as my mood, pain level and task are all factors in selecting what I will choose.

For example, travelling by Bus, Car or Train I have a specific selection of bands that I would choose from, such as – Nirvana, Foo Fighters, Queen, Nickleback, Counting Crows, Garth Brooks, First Aid Kit, The Beach Boys, The Mavericks or The Beautiful South.

For more leisurely pursuits such as reading or writing, I have a different selection that I choose from that consists of – AC/DC, Kiss, The Carpenters, The Clash, Elvis Presley, Fleetwood Mac, Red Hot Chilli Peppers, The Vaccines, The Stranglers and 30 Seconds to Mars.

As you can tell a nice easy listening selection for an ageing heavy metal rocker like Myself. Here’s the proof with my passport picture from 39 years ago, 18 yrs old.

thumbnail

I know what your thinking, did his parents really let him go out dressed like that? Sadly I haven’t aged so well.

Rock Star or what?

There has been a lot of trial and error in putting together my playlists which has been so much fun, as well as being important to me so I get the results I need.

One last thing though, is I have to remember to set an alarm on my phone to make sure I get up and move around, otherwise, I could end up in a lot more pain than I started with,

Good luck if this is something you decide to try.

Take care

Gary x

Day 6, My First Attempt

The next post will be my first attempt at writing, if you have the time please read through it and let me know what you think about it, honesty please.

I want writing to become a big part of my life’s reading has. So I need to start sharing, I need to start getting pieces written and out there for all to see.

The first piece I have written how my life has changed over the last 7 years and how I have I have become the person I am today. A pretty positive one.

A little heads up on what I am living with health wise these days. I have allergies to eggs, fowl and peanuts. I live with anxiety, depression, Asthma, Type 2 Diabetes, Osteoporosis (spinal damage), undiagnosed MS (Spinal cord liaison), Neuropathy, Tested positive for Sarcoidosis (in remisson) and to top it all off Fibromyalgia.

Endgame

Spoiler alert ” there are no spoilers in this post”

After resting for 2.5 days, I went for a coffee at the Cafe in the Park in my nearset town. I got there around 2:30pm and sat outside the Cafe drinking a very nice coffee, the sun was shining and I started to read my book “East of Croydon”, I then put on my  headphones listening to The Stranglers greatest hits, every now again I would look up  from my book and there would be a squirrel rumaging for food or a robin sitting in a Branch singing. Perfection, best medicine in the world.

So 3 o’clock arrived and so did my smiling boss, unfortunately that was the moment the sun decided to go in. So we moved inside to the Cafes conservatory to drink our coffee and talk about my health, football and the forthcoming meeting with our  HR rep, about how and when my being released from my job on medical grounds will be decided. Now I am very sad about what is going to happen, as I love my job and the people I work with. There is no bad feeling on either side and I really hope my health is going to  allow me to volunteer in the office.

Endgame

To say I was excited about what I was to do next would be an understatement, I was about to tick off another item from my bucket list. A trip to the Cinema to see Avengers Infinity war : Endgame. Luckily it wasn’t  going to be a packed cinema due to it being an afternoon showing on a schoolday and I managed to get an aisle seat Row G. Everything was set perfectly, the advertisments finished, the trailers began, the anticipation was rising.

Then just as the film was about to start two late comers arrived, they started walking up the aisle. Now the seats are quite small and there isn’t much leg room, hence the need for the aisle seat,damn they were sitting in my row so I would have to get up, so before I was fully standing they pushed passed whilst muttering “sorry” as I dropped back into the seat.

The film stareted everyone went quiet then I heard tose words you dread in the Cinema “scuse me”, it had only been 10 minutes, again never quite got to my feet before he pushed past, back I dropped, then repeat sequence 5 minutes later whe he got back from the loo.

Relax , deep breath, back to watching the movie, 30 minutes later repeat the sequence but it was his mate this time, one of the things that I really had a problem with was the absolute stench of smoke and beer

Relax, deep breath get back towatching the movie again. 20 minutes pass and I start to her a really strange annoying  noise, after about 10 minutes I realised that guy nearest me had fallen asleep and was snoring, this went on for about an hour  when he suddenly woke up and stared to pee into his empty drinks bottle, I relised they were getting up again so as fast fast as I could( which is close to watching somebody move in slow motion) I tried to stand up and get out of the way, no chance they caught my left leg as they ran past, so I fell back over the arm of the seat, landed with my backside on the seat and my legs and stick still sticking over the arm and out into the aisle, before I had sorted myself out they’d legged it through the door and were gone never to return, carried out a quick pee check to make sure I hdn’t been splashed in  all the confusion. then……..

Relax, deep breath and an extra strong mint this time, then settled down to watch the rest of the film. Wow the film lived up to all my expectations and more, I would reccomend it to everyone whether you are a mavel fan or not.

So all in all another blooming good day.

In the words of  Police Seargant Phil Esterhauss from the tv show  Hill Street Blues

“Let’s be careful out there”

all the best, Gary

Ps When I said the sun went in when my boss arrived, I wasn’t inferring that she was the cause of it going in. I needed to may that clear. She’s a little ray of sunshine really 🙂

 

 

 

A Better day

Damn, what a difference a good nights sleep makes, and it’s been a while since I’Ve had one of them.

Pain levels are still high, but mentally feeling less stressed out and low, so today I’m just spending time chilling, I have things I need to do, but I’ve decided they can wait until tomorrow.

My youngest daughter has been promoted to supervisor where she works and has been taken on full-time as well, great news as she is saving up to go to University next year, to follow her dream of becoming an actress and writer.

Today my wife has gone up to Oxford to see our middle daughter who will soon be starting her preparations  to begin her year 3 nursing degree after a short period of ill-health.

My eldest daughter  is starting to look for a new job or got back into full-time education because where she works now will be closing down in October, She is also looking at doing a 3 month solo trip around europe which will be amazing for her.

Finally my wife is hoping to go to a wedding in Toronto, Canada in July, for the marriage of her oldest friends second daughter, which will be an emotional reunion.

For me, well I have decided to re-write my bucket list,  hopefully it will be good fun and also help me to come up with some good ideas on which direction I want my life to go in once work is finished.

Live…..Love…..Laugh, but not necessarily in that order.

Take care

Gary

F##k it

You know what I have learned techniques to help me stay positive, I’ve read books about positive thinking, I’ve even used apps, but occasionally, just occasionally you can have a day where your outlook is perfectly described by these 2 words ” F##k it”. 

Sorry about that but today is one of those days.

F##k it

F##k it

Fuck it

F##k it

F##k it.

.

.

.

.

.

.

.

Fuck it.

 

 

 

 

 

 

 

 

 

 

New meds day 6

Ok, so day six of taking my new medication.

what’s changed

Pros

  • The burning and freezing sensations to my hands and feet have stopped.
  • Still getting headaches but not as severe or long now.
  • Absences have almost disappeared.
  • Widespread itching is getting less each day.
  • Improvement to chest pain, as only hurts now when doing activities.
  • Drowsiness is getting less

Cons

  • Still fatigued.
  • No change to pain in legs, feet and toes, knees and ankles, thighs and calves.
  • No change to pain in hands, wrists and fingers.
  • No change to lower neck pain and lower back pain.
  • Memory and concentration still poor.
  • Mobility still a problem with coordination, trips, falls and legs giving way.
  • Grip stillpoor and painful, so still breaking things

So some improvement is a positive sign, each small step is a victory.

I will be starting the second part of my new treatment on April 16th which will be a high dose infusion of an anaesthetic called Lignocaine, which will hopefully reset the amount of pain caused by my nervous system could return to zero or be a lot lower. So this could be just one dose and it works in which case job done, or it could be temporary and I would either repeat the treatment once a year or once every 3 months whichever works best. or it could be that the treatment just doesn’t work.

But before this happens I will be having my yearly head/neck/spine MRI to check if there are any more spinal chord liaisons and to also check the compression fracture and bone thinning caused by the Osteoperosisis so fingers crossed there will be no change.

So on the whole I’m feeling pretty positive about things, I know I am a long way off being able to start working again. Though maybe I  will be able to getting out of the house and do some of the things I enjoy doing like people watching whilst out having a coffee or doing some photography, maybe I will even get the chance to go and watch the Hammers play at home sometime as it has been far too long since I saw them play live.

Finally I made a start on updating my memory book which I am finding really enjoyable. I have also been doing some thinking (which some would say is dagerous) and have made the decision that I will not carry on using a mobility car when it comes up for renewal in November as it’s highly unlikely I will be driving for quite a while.

Thank you for reading or following my blog but even if nobody is out there reading it that’s ok because it is helping me make sense of what I am going through, it is also helping me to stay strong, off to listen to Fleetwood Mac “Rumours album”

Adios amigos

Gary

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