The next post will be my first attempt at writing, if you have the time please read through it and let me know what you think about it, honesty please.
I want writing to become a big part of my life’s reading has. So I need to start sharing, I need to start getting pieces written and out there for all to see.
The first piece I have written how my life has changed over the last 7 years and how I have I have become the person I am today. A pretty positive one.
A little heads up on what I am living with health wise these days. I have allergies to eggs, fowl and peanuts. I live with anxiety, depression, Asthma, Type 2 Diabetes, Osteoporosis (spinal damage), undiagnosed MS (Spinal cord liaison), Neuropathy, Tested positive for Sarcoidosis (in remisson) and to top it all off Fibromyalgia.
Damn, what a difference a good nights sleep makes, and it’s been a while since I’Ve had one of them.
Pain levels are still high, but mentally feeling less stressed out and low, so today I’m just spending time chilling, I have things I need to do, but I’ve decided they can wait until tomorrow.
My youngest daughter has been promoted to supervisor where she works and has been taken on full-time as well, great news as she is saving up to go to University next year, to follow her dream of becoming an actress and writer.
Today my wife has gone up to Oxford to see our middle daughter who will soon be starting her preparations to begin her year 3 nursing degree after a short period of ill-health.
My eldest daughter is starting to look for a new job or got back into full-time education because where she works now will be closing down in October, She is also looking at doing a 3 month solo trip around europe which will be amazing for her.
Finally my wife is hoping to go to a wedding in Toronto, Canada in July, for the marriage of her oldest friends second daughter, which will be an emotional reunion.
For me, well I have decided to re-write my bucket list, hopefully it will be good fun and also help me to come up with some good ideas on which direction I want my life to go in once work is finished.
Live…..Love…..Laugh, but not necessarily in that order.
Ok, so day six of taking my new medication.
- The burning and freezing sensations to my hands and feet have stopped.
- Still getting headaches but not as severe or long now.
- Absences have almost disappeared.
- Widespread itching is getting less each day.
- Improvement to chest pain, as only hurts now when doing activities.
- Drowsiness is getting less
- Still fatigued.
- No change to pain in legs, feet and toes, knees and ankles, thighs and calves.
- No change to pain in hands, wrists and fingers.
- No change to lower neck pain and lower back pain.
- Memory and concentration still poor.
- Mobility still a problem with coordination, trips, falls and legs giving way.
- Grip stillpoor and painful, so still breaking things
So some improvement is a positive sign, each small step is a victory.
I will be starting the second part of my new treatment on April 16th which will be a high dose infusion of an anaesthetic called Lignocaine, which will hopefully reset the amount of pain caused by my nervous system could return to zero or be a lot lower. So this could be just one dose and it works in which case job done, or it could be temporary and I would either repeat the treatment once a year or once every 3 months whichever works best. or it could be that the treatment just doesn’t work.
But before this happens I will be having my yearly head/neck/spine MRI to check if there are any more spinal chord liaisons and to also check the compression fracture and bone thinning caused by the Osteoperosisis so fingers crossed there will be no change.
So on the whole I’m feeling pretty positive about things, I know I am a long way off being able to start working again. Though maybe I will be able to getting out of the house and do some of the things I enjoy doing like people watching whilst out having a coffee or doing some photography, maybe I will even get the chance to go and watch the Hammers play at home sometime as it has been far too long since I saw them play live.
Finally I made a start on updating my memory book which I am finding really enjoyable. I have also been doing some thinking (which some would say is dagerous) and have made the decision that I will not carry on using a mobility car when it comes up for renewal in November as it’s highly unlikely I will be driving for quite a while.
Thank you for reading or following my blog but even if nobody is out there reading it that’s ok because it is helping me make sense of what I am going through, it is also helping me to stay strong, off to listen to Fleetwood Mac “Rumours album”