Pain

Oooh Hospital again

So Today was my second visit to the Pain management clinic at Charring Cross Hospital in London, 4 weeks ago the new medication they got me to try was an Opioid called Tapentadol which caused some horrible side effects.

In the past 7 years I’ve had many treatments and medications to try to help with my constant widespread pain.

First I was tried on Gabapentin & Pregabalin they’re epilepsy drugs which are also used to treat nerve pain, horrible side effects and weight gain.

Then they tried me on Amitripyline then Tramadol again side effects but no pain relief.

I was then tried on codeine phosphate which caused me to have  hallucinations but also did nothing for the pain

Next they gave me a Steroid injection into my lower back , but it didn’t help to reduce the pain.

3 years ago they tried me on a 3.5 hour  steroid infusion spread over 2 days, but again a few minor side effects but no pain relief..

Today’s visit to the pain management centre involved a 10 mg Ketimine which worked really well got me as high as a kite and for the first time in 7 years I was pain-free, straight after the injection I was put on a Lidocaine which they were hoping would reset my nerve pain levels back to Zero.

The  infusion lasted for about an hour, for the first half hour I laid there bid smile on my face listening to queen blast out on my head phones, for me at that point I thought life couldn’t get any better. Sadly I was right, as the Ketimine started to wear off the pain started returning legs first, then spine and Neck.

Now I am back Home it’s 9pm and all the pain has returned, back to the levels I have now become used to. I’m still glad I tried the treatment as it may have ment I might have been able to return to my job which I love doing. Two good things about today I got to go up to LOndon with the wife and youngest daughter and during the treatment I got to listen to one of my favourite albums Queen’s greatest Hits uninterrupted, just hope I wasn’t singing out loud.

Till the next time, look after yourselves,

Gary

 

Opioid Days

Day 4

Okay another very bad nights sleep with pain being the main culprit keeping me awake

Trying new meds is a bit like “De ja vu”  I’m only on a low dose but only getting a slight benefit pain management which is good, but on the other hand the side effects I’m getting are not good. This has been the same pattern for each pain meds I have been tried on for the last 8 years.

Side effects    

  1. The widespread itching has gotten worse.
  2. Feeling a little high most of the time.
  3. Concentration is still bad.
  4. Forgetfulness is still bad.
  5. Oh yeah forgetfulness is still bad.
  6. Short term memory is rubbish.
  7. What was I doing?
  8. Where am I?
  9. What day is it?
  10. Why am I here?
  11. What time is it? I don’t know how many times a  day I ask these 5 questions but I can tell it’s a lot.
  12. Neck and lower back pain are still bad.
  13. Pain when breathing is still the same.
  14. Still getting the occasional hand tremors.
  15. Balance is still poor as is co-ordination.
  16. Still dropping and braking things.
  17. Still tripping and falling quite a bit.
  18. Have having absences since I started the new meds.
  19. Spacial awareness not good.
  20. A major improvement on Saturday West Ham won 4-3.
  21. Brighton won today after playing for about 3 hrs at Millwall, so the boss will be happy.
  22. Haven’t broken any crockery for 2-3 days that’s a bonus.
  23. Happy St Patrick’s day.
  24. Enjoying sitting in my shed tonight writing my blog looking at my favourite pictures hanging on the walls
  25. Last but not least my memory is still crap.

Tomorrow I’m going to work on my memory album and also write down of all the countries, cities and American states where I have either worked or visited.

One last thing I would like to recommend a book that I read recently. It’s called “Why are you pretending to be normal” by Dr Phil Friend OBE and David Rees. It about how disabled people see their own disabilities and how able-bodied people see our disabilties. It asks a really interesting question about near  the end of the book. “Are you disabled by other people’s perceptions of you or by your own perception of you?”

Thanks for taking the time to read my ramblings and remember be kind to yourself and to others.

Take care,

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