Day 6, My First Attempt

The next post will be my first attempt at writing, if you have the time please read through it and let me know what you think about it, honesty please.

I want writing to become a big part of my life’s reading has. So I need to start sharing, I need to start getting pieces written and out there for all to see.

The first piece I have written how my life has changed over the last 7 years and how I have I have become the person I am today. A pretty positive one.

A little heads up on what I am living with health wise these days. I have allergies to eggs, fowl and peanuts. I live with anxiety, depression, Asthma, Type 2 Diabetes, Osteoporosis (spinal damage), undiagnosed MS (Spinal cord liaison), Neuropathy, Tested positive for Sarcoidosis (in remisson) and to top it all off Fibromyalgia.

New meds day 6

Ok, so day six of taking my new medication.

what’s changed

Pros

  • The burning and freezing sensations to my hands and feet have stopped.
  • Still getting headaches but not as severe or long now.
  • Absences have almost disappeared.
  • Widespread itching is getting less each day.
  • Improvement to chest pain, as only hurts now when doing activities.
  • Drowsiness is getting less

Cons

  • Still fatigued.
  • No change to pain in legs, feet and toes, knees and ankles, thighs and calves.
  • No change to pain in hands, wrists and fingers.
  • No change to lower neck pain and lower back pain.
  • Memory and concentration still poor.
  • Mobility still a problem with coordination, trips, falls and legs giving way.
  • Grip stillpoor and painful, so still breaking things

So some improvement is a positive sign, each small step is a victory.

I will be starting the second part of my new treatment on April 16th which will be a high dose infusion of an anaesthetic called Lignocaine, which will hopefully reset the amount of pain caused by my nervous system could return to zero or be a lot lower. So this could be just one dose and it works in which case job done, or it could be temporary and I would either repeat the treatment once a year or once every 3 months whichever works best. or it could be that the treatment just doesn’t work.

But before this happens I will be having my yearly head/neck/spine MRI to check if there are any more spinal chord liaisons and to also check the compression fracture and bone thinning caused by the Osteoperosisis so fingers crossed there will be no change.

So on the whole I’m feeling pretty positive about things, I know I am a long way off being able to start working again. Though maybe I  will be able to getting out of the house and do some of the things I enjoy doing like people watching whilst out having a coffee or doing some photography, maybe I will even get the chance to go and watch the Hammers play at home sometime as it has been far too long since I saw them play live.

Finally I made a start on updating my memory book which I am finding really enjoyable. I have also been doing some thinking (which some would say is dagerous) and have made the decision that I will not carry on using a mobility car when it comes up for renewal in November as it’s highly unlikely I will be driving for quite a while.

Thank you for reading or following my blog but even if nobody is out there reading it that’s ok because it is helping me make sense of what I am going through, it is also helping me to stay strong, off to listen to Fleetwood Mac “Rumours album”

Adios amigos

Gary

Opioid Days

Day 4

Okay another very bad nights sleep with pain being the main culprit keeping me awake

Trying new meds is a bit like “De ja vu”  I’m only on a low dose but only getting a slight benefit pain management which is good, but on the other hand the side effects I’m getting are not good. This has been the same pattern for each pain meds I have been tried on for the last 8 years.

Side effects    

  1. The widespread itching has gotten worse.
  2. Feeling a little high most of the time.
  3. Concentration is still bad.
  4. Forgetfulness is still bad.
  5. Oh yeah forgetfulness is still bad.
  6. Short term memory is rubbish.
  7. What was I doing?
  8. Where am I?
  9. What day is it?
  10. Why am I here?
  11. What time is it? I don’t know how many times a  day I ask these 5 questions but I can tell it’s a lot.
  12. Neck and lower back pain are still bad.
  13. Pain when breathing is still the same.
  14. Still getting the occasional hand tremors.
  15. Balance is still poor as is co-ordination.
  16. Still dropping and braking things.
  17. Still tripping and falling quite a bit.
  18. Have having absences since I started the new meds.
  19. Spacial awareness not good.
  20. A major improvement on Saturday West Ham won 4-3.
  21. Brighton won today after playing for about 3 hrs at Millwall, so the boss will be happy.
  22. Haven’t broken any crockery for 2-3 days that’s a bonus.
  23. Happy St Patrick’s day.
  24. Enjoying sitting in my shed tonight writing my blog looking at my favourite pictures hanging on the walls
  25. Last but not least my memory is still crap.

Tomorrow I’m going to work on my memory album and also write down of all the countries, cities and American states where I have either worked or visited.

One last thing I would like to recommend a book that I read recently. It’s called “Why are you pretending to be normal” by Dr Phil Friend OBE and David Rees. It about how disabled people see their own disabilities and how able-bodied people see our disabilties. It asks a really interesting question about near  the end of the book. “Are you disabled by other people’s perceptions of you or by your own perception of you?”

Thanks for taking the time to read my ramblings and remember be kind to yourself and to others.

Take care,

Lists, My Favourite…………….?

Sitting up late, can’t sleep yet as I’m in so much pain, so to try to take my mind off things I have decided to write different lists of my favourite things.

So I’ve started off with 25 of my favourite films in no particular order, many of which are about overcoming adversity

1) Man on Fire
2) Gran Torino
3) I Daniel Blake
4) Avengers Assemble
5) Gone in 60 Seconds
6) Field of Dreams
7) 300
8) Unstoppable
9) The Warriors
10) Shooter
11) Unbreakable
12) The Sixth Sense
13) The Losers
14) 42 The Jackie Robinson story
15) A Few Good Men
16) Coach Carter
17) Deadpool
18) Patch Adams
19) Watchmen
20) Money Ball
21) Invincible
22) Heaven Can Wait (original version)
23) Remember The Titans
24) Bi-centennial  Man
25) Logan

 

My Favourite Meals in no particular order are.

1) Boston Clam Chowder with Sourdough bread.
2) Lamb Vindaloo with Pilau rice and a garlic naan bread.
3) New Mexico Hatch green chilli stew.
4) jalapeno poppers.
5) Sizzling steak fajitas.
6) Blackened Catfish with dirty rice.
7) Tom Yum Soup (Thai).
8) Bacon & Cabbage (Ireland)
9) Barbecued  Garlic Langostines (Singapore).
10) Thin & Crispy jalapeno & Pepperoni Pizza.
11) Irish Stew
12) Texas style barbecue  beef ribs.
13) Toasted Bacon sandwich made with Sourdough bread.
14) Garlic & Chilli Pasta (Rome)
15) Beans on Toast.
16) Mushroom soup
17) Fruit salad
18) Chilli con Carne.
19) Bruschetta with garlic, tomato, Olive oil, Balsamic vinegar and parmesan cheese.
20) Fish & Chips

Bugger, well that’s helped me take my mind off my pain a bit, but now I can’t stop thinking about bloody food.

Hope you all have a great weekend.

 

Music One of the best medicines in the world.

I just wanted to share the names of the top 20 bands I like to listen to when I am out driving my car or just feeling a little stressed or fed up.

For example of this happened on Monday, I needed to drive to the chemist to pick collect the second half of my prescription. Now anyone that knows me also knows I can’t hold a tune and I don’t exactly look like a rock star.

But when I’m driving in my car on my own, even if it’s only to the local chemist and I have Queen blasting out on the sound system then I’ll be singing at the top of my lungs and at that time I felt like a “Rock God”, well to me anyway.

It certainly put a smile on my face on my face for the rest of the day.

  1. The Beach Boys
  2. Nickleback
  3. AC/DC
  4. The Vaccines
  5. Bob Marley & the wailers
  6. The Clash
  7. Creed
  8. Counting Crows
  9. First Aid Kit
  10. Foo Fighters
  11. Red Hot Chilli Peppers
  12. Thirty Seconds to Mars
  13. The Mavericks
  14. Queen
  15. Kiss
  16. The Four Seasons
  17. ELO
  18. Eagles
  19. Black Sabbath
  20. The Beautiful South

Keep on trucking, and feel the groove people.

MC Gazzer

A bit of positivity goes a long way.

So on the whole I have to say that Tuesday was pretty good.

  • Woke up with the usual amount of pain, tight muscles and stiff joints.
  • Took all my pills, skipped breakfast as feeling sick like most mornings.
  • Went to the Chemist to pick up my monthly sack of meds which fits just nicely into my rucksack.
  • Then treated myself to a haircut, I do like a bit of pampering every six weeks.
  • After the haircut I treated myself to a bacon roll and a black coffee, absolute heaven, don’t do this very often, so I really enjoyed it.
  • Today just keeps getting better and better.
  • Then came the part of the day I had been looking forward to I was picked up from home by one of my colleagues and got a ride to the office for the monthly team meeting. The last one I had attended was May just before my health took a nosedive. It was so nice to see the whole team again, even taking part in the impromptu photo shoot for facebook as Tuesday was national stress awareness day. Then the Boss gave me a lift home after, makes me realise just how important my work mates are to me and also how important my job is to me.
  •  .facebook_1541689136841.jpg
  • The offending picture. My God, how many chins?
  • So you see it’s these times with my family and my dog and these moments friends and colleagues each day or week or month, that mean I can carry on, that keep me positive whilst I am continually waiting for neurology or rheumatology appointments, for chronic pain and chronic fatigue clinics and most importantly having to wait for the occasional bacon roll.
  • When I got home I was absolutely exhausted my pain levels had returned to “I need to lie down right now and not move for at least week” but it was so worth it.
  • Then I spent a lovely evening with the family, nice meal and a lot more pills, then watched a bit of telly to unwind.
  • Finally got to bed around 3am, but that was OK as I knew I had a couple of days of nothing to do but relax and recover.

For me that’s what I call balance and it seems to be working out OK.

 

In the words of Mister Spock “Live long and Prosper”

 

And the winner….. is!

It’s Tuesday so it must be the Great British bake off. Absolutely love this programme in fact it’s been one of my favourite shows since I first started watching it when it first began.

250px-The_Great_British_Bake_Off_title.jpg

Now those of you who know me me May think that that it’s a bit strange that I would enjoy watching a baking show, seeing as I have been allergic to eggs since I was born. It also means I have never tasted or eaten cake in my life.

For Me though it’s all about the contestants, the joy of being star baker and the heartbreak of being the one that is asked to leave. Each week they arrive full of hope and positivity doing something they love, wanting the best for each other, supporting each other whilst at the same time wanting to win the final.

This programme always puts a smile on my face and the presenters always make me laugh, whether it was Mel & Sue or Sandy & Noel, and nothing beats a Hollywood handshake, I do miss Mary Berry but prue is starting to grow on me.

I’m not really bothered about who wins, but I like to pick someone on week one just for a bit of fun, the only winner I have got right so far is Nadia, though I have picked at least 4 or 5 finalists. For this season I  have picked Ruby, but I am glad Kimjoy is in the final as well, it’s just a shame that Bryony went home last week.

Bring it on 😁

 

 

 

Wild Like the Flowers

Rhymes and Reasons

blogsy

the easiest way to discover your next favorite blog

Joshi Daniel Photography

Photoblog of Joshi Daniel

Bag Full of Rocks

My rocks are the memories from different adventures. I thought I would just leave this bag here.

JaipurThruMyLens

Best Jaipur Blog And Travel Guide

PhoebeMD: Medicine + Poetry

Health • Inspiration • Life

Outside Books.

A collection of thoughts

Meg Dowell Writes

Putting ideas into words.

StarlitDen

Illustration, Concept Art & Comics/Manga

Learnography

Format your brain for knowledge transfer

Kumain ka na ba?

Food tripping in Manila and beyond!

Mom Life, Food and Travel

Mom Life, Food and Travel

Being Utopia

Curving back within myself I create again and again.